Rett's Syndrome

Last Modified: 11/13/2012 10:01:17 AM


Client Notes: Indication for study will be required

*Send copy of insurance cards and proper paperwork with specimen to Genetics Department

Complete the Baylor Molecular Requisition
Specimen Requirements: (Two) 3.0 mL Whole Blood in a Lavender Top Tubes - EDTA
Collection Instructions:

Draw Monday through Thursday

Minimum Volume: 3.0 mL
Transport & Storage: Temperature/Stability: 2 days Ambient
3 days Refrigerated
Unacceptable Frozen
Reference Range: Refer to Interpretive Results
Methodology: Southern and densitometry analysis for gene rearrangements involving MECP2 exons 1-4.
Clinical Significance:

Rett syndrome is an X-linked neurodevelopmental disorder caused by mutations in the MECP2 gene which encodes the Methyl CpG Binding Protein 2 transcriptional repressor. Rett syndrome affects ~1 in 10,000 females with symptoms including loss of speech and purposeful hand use, microcephaly, seizures, ataxia, and stereotypic hand movements. MECP2 mutations manifest a broader spectrum of clinical phenotypes in female and rare male patients, with features overlapping with other mental retardation disorders. Mutations in the MECP2 coding region can be detected by sequence analysis in up to ~85% of Rett cases (see MECP2 Sequencing Analysis). In addition, large MECP2 gene deletions have been identified in approximately 10% of Rett patients. Our laboratory offers Southern analysis to detect gene rearrangements involving MECP2 (exons 1 through 4) for patients with a documented negative MECP2 sequencing study.

Custom Panel: No

PRODUCTION SCHEDULE

Turn Around Time: 3 weeks
Days Performed: Monday, Tuesday, Wednesday, Thursday
Other Testing Facility: Baylor
PHL Test Code: RETX
Send Out Test Code: 6069
Alternate Test Names: MECP2 Deletion Analysis; Rett syndrome (MECP2); Retts Syndrome; Retts Syndrome DNA
CPT Coding: 83898 x 3, 83904 x 7, 83909 x 3, 83912, 83890

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